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August 25th, 2006

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09:02 pm - New to the community...
Hello All. My name is Kimberly, I am 22 years old from Baltimore, Maryland. I graduated with a Political Science degree last year and am currently working doing research for a law firm. Anyway, I was diagnosed with TS when I was 4. I find that sometimes I completely forget I have TS and other times it can feel like an overwhelming obstacle. I was on growth horomone from 8-16 and began horomone replacement at 15. Anyway, I wasn't made aware of the facts of how my body was different from a normal woman's and that there was a very slim chance of me having children that were biologically mine until I was around 10 or 11. Until this time I had only thought of having biological children and never considered adoption. To be honest, while I definitely have the utmost respect for people who do so, I'm not sure that will be the right choice for me when the time comes. Anyway, as I have gotten older and starting to think more about these things (marriage, children) I have began to struggle more with the reality of never having children, and how I want to handle my options. I don't have a partner currently, but I feel like these feelings are something I should sort out to know where I stand myself before a partner and I could discuss it. I feel like no one can really understand all the feelings that go along with this like another woman with TS may, and it would discuss with other woman with this condition how they feel about it, and how they discussed it with their partners, so I was so glad when I found this community. Also, I know having TS can be difficult at times when you are growing up, so if any of you younger want advice or just to talk to someone who knows what you are going through, feel free to get in touch with me...

(6 comments | Leave a comment)


[User Picture]
Date:August 26th, 2006 02:15 am (UTC)
Hi. Welcome to the comm. We're a pretty open and friendly bunch. I know exactly what you mean about sometimes forgetting and othertimes being overwhelmed by it. The best thing is just to find more friends who have it and will understand.


ps. My icon is about TS. A friend once asked me if TS is a form of mutation, and I resonded "yes, it is genetic deviation" and she said "WTF we're mutants!" and then we got into joking around about being Xmen.
[User Picture]
Date:August 26th, 2006 03:09 am (UTC)
"Mutation is beautiful" That's very cute :D Thanks for the welcome...
[User Picture]
Date:August 26th, 2006 02:51 pm (UTC)
I understand completely where you're coming from. I was diagnosed at 3, but really didn't understand exactly how I was different until I was 9 (when I started growth hormone). I always planned on having children, even as a very young child, so my Mom's explanation of exactly what TS means as she explained it to me at age 9 still resonates today at age 25.

I also know what you mean with regards to feeling as though you almost forget about it sometimes, and others, it seems like a huge obstacle.

Even though I'm now engaged, at age 22 my personal like was a mess. I never thought that I'd meet the right guy - or if I did - he wouldn't be interested in me (or interested in me until he discovered that I have TS)... Well, I worried and worried about how I was going to tell someone whom I wanted to marry that we would probably be unable to have children naturally.

You know what? By the time I was ready to tell my fiance that I have TS (we weren't engaged yet, of course), it was anti-climatic. An old high school friend of mine had set us up originally, and she told him all about it - even before he met me. I didn't even realize that she knew that I have TS. My fiance and I had been friends for close to 4 years before I decided it was time to tell him about TS. In all those years, he never mentioned it, never treated me differently, nothing. There was no clue that he knew!

The point is this: sometimes the things you worry about most turn out to be absolutely nothing. Just when you think that you are doomed to spend your life alone ala Bridget Jones, things come together! Heck, the right guy is probably right under your nose (he was under mine).

So my advice is to hang in there!

Also, a friend of mine (who also has TS) and I started a website called TS Corner (www.tscorner.net). Please check it out! We have a forum and we need to get it going!

Please feel free to contact me anytime. I love to chat with other women who have TS.

Also, with regards to the mutant comments, that is awesome! We are a female version of XMen!

More later.

[User Picture]
Date:August 27th, 2006 01:32 am (UTC)
Thanks so much for your response, Lindsey. I remember with me, my sister was the one who ultimately taught me what Turner Sydnrome was at 10 or 11, and what it meant for me. I think she learned about it in some anatomy book, and my mom didn't think I was ready to know, for reasons I am still not quite sure of, but she told me. I then learned even more from my doctor and read some brochures and things. It was alot to come to terms with than, and it still it as times.

I have only gone to one or two conferences that were in my area for girls with TS, and met another girl who lives in my city with it, and had another from out of state come to visit me one time, (and most of this was when I was younger and before I was fully of what having TS meant) but other than that I have not talked to many other TS women, and have really decided that I want to start doing so.

It does make me feel hopeful to hear how well things have turned out for you. I wish all the best for your upcoming wedding.

I have had one serious relationship, that lasted a year and a half, and fairly early I did tell my boyfriend about it, he was understanding about it, and open about looking into our options if we got married as far as adopting or IVF. I just wonder if other men will be that way though, I mean if he has heart set on having his own natural children, I feel I should make him aware of this before a relationship gets too serious. However, I obviously wouldn't want to tell him too soon either, so its complicated in that way. I sometimes do feel like I'll never find the right guy, but like you say I'll hang in there and keep the faith :P

Everyone in this community seems to be very friendly, open, and welcoming, and I look forward to posting more and getting to know everyone here better, and will definitely check out your forum.

Hope to hear from you again soon....

Date:May 19th, 2008 07:48 pm (UTC)
hey Kimberly! I never knmew this group existed I was gone from LJ for a while. My name is Mary Alice and I am also an X-Woman. Or should that be Only-One-X Woman?
[User Picture]
Date:May 19th, 2008 10:41 pm (UTC)


Hey Mary Alice! It's nice to meet you, I got both your messages. Unfortunately, I won't be able to go to the conference this year, due to being unemployed, but hopefully I'd love to go in the future, I'd definitely love to keep in touch, always nice to meet another one-X woman :D

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